Jaalaka – Connecting the HIV/AIDS Community through
Technology (formerly known as Frontline SMS for Healthcare)
They sat cross-legged on the woven jute mats in the middle of
the unpaved cul-de-sac daubed with sporadic flora and remnants of Styrofoam
cups and chocolate wrappers. The village women, barefoot and wrapped in humble
chiffon saris, recounted how they cared for the orphans and ensured their basic
needs and education. With no wealth to speak of, these women had voluntarily
assumed the duties of a parent to orphans affected or infected with HIV/AIDS.
They are the paradigm of the Chinese proverb, “Women hold up half the sky.”
Throughout the past few weeks in Hubli as part of the Frontline SMS team that
works jointly with NGOs assisting female sex worker and HIV/AIDS communities, I
have seen countless examples of women holding up the sky. Peer educators (HIV
positive sex workers) share their knowledge about prophylactics with fellow sex
workers in the midst of stigma and discrimination. Female outreach workers, in
their attempts to provide access to HIV/AIDS testing and anti retroviral
treatment to female sex workers, face incessant gossip. Unfazed, these women
persist in their duties of helping vulnerable women in the sex trade live a
dignified life. In the largest democracy, these women live with limited
freedom, disparaged in the home, workplace or streets. The initiation into sex
trade varies with each individual with cases ranging from deception to limited
or no alternative economic opportunities. The aftermath, however, is common;
the women are mired in controversy and discrimination.
Village Foster Mothers and Orphans
The human trafficking/sex trade is a clandestine operation,
eclipsed by the bedlam of society, but these weeks have shown us the
vulnerabilities, the oppression, and the strength and courage of these women in
facing discrimination. Combating stigma and discrimination is a gradual path,
but we can start by helping women recognize their potential and increasing
awareness in the community. By fixing technical issues, employing an effective
data collection system, and expanding the project, my team and I aim to empower
more women through SMS technology to help them realize that they can hold up
the sky.
Outreach Workers and Peer Educators
The Jaalaka team is working with the Karnataka Health
Promotion Trust (KHPT) and its affiliated NGOs to expand the use of
FrontlineSMS to better connect HIV/AIDS advocacy organizations and their
clients. The project goals include: 1) resolving current technical issues with
FrontlineSMS software usage by BCT; 2) developing local sources of assistance
for potential technical issues that may arise in the future; 3) expanding FrontlineSMS
software usage to include form-based messages for IPPCC/Jeevanmukhi; 4)
implementing FrontlineSMS text message and form-based messages for CCC; and 5)
exploring other applications of FrontlineSMS within KHPT HIV/AIDS treatment and
prevention network to improve service delivery and data collection.
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